Whine of the Month Club
Where a mommy can come and whine about her day! So put on your big girl panties and realize that sometimes life isn't all rainbows and unicorns!
Thursday, January 5, 2012
Let's Try this school thing again!
So as of yesterday JD is back in public school. I tried my best to get all my ducks in a row with the school so he could have a successful school experience again. Fingers crossed that it works. He should be fine for the next 30 days because they have to keep him in the sped (RIN) class 100% of the day. We will have an ARD on February 14 and I'm sure at that time they will want to throw him right into gen Ed only time will tell.
Thank God the "holiday" is over!
So after kinda holding it together during the holidays JD started to fall apart at the seams on 12/27 then by 12/29 I had had enough and felt the safest place for him was the psy hospital so at 4 as he raged on and on Thursday the 29th I ended up calling CC to see if they had a bed for him and they said yes they would have one at 7 pm so I called the sitter packed his bag while he followed me around the house screaming saying he was going to hit me and tear down the house got all the other kids settled in with the sitter got him loaded in the van and drove an hour away to CC we got there right at 7 (I gave him his night meds) then we settled in a tiny little room to start the paper work an hour and a half later the nurse came into the little room and said the psydoc on call had reviewed the paperwork and he was not in need of a hospital stay after all. WTF? The reason they gave was he did not hurt himself or me this time so go home and if he hurts you bring him back. NICE nothing like being sent home with a child that could try to kill you next time he rages. Anyway night meds kicked in dad was home the next 3 days so I could stay on top of things with JD and he started to be more stable. At least until the next time :(
Saturday, December 24, 2011
Christmas Eve Fun NOT!
So the manic behaviors noted today!
1. over exaggerated movements.
2. impulsive
3. clapping
4. being destructive (puzzle that was half finished)
5. obsessive
Welcome to Christmas (and it's only Christmas Eve)! God let my yellow pill kick in before I want to cancel all holidays until further notice!
My Christmas Spirit!
1. over exaggerated movements.
2. impulsive
3. clapping
4. being destructive (puzzle that was half finished)
5. obsessive
Welcome to Christmas (and it's only Christmas Eve)! God let my yellow pill kick in before I want to cancel all holidays until further notice!
My Christmas Spirit!
Blood Level Update
So it looks like every time we find a med that works for JD's brain his body decides that it doesn't like it and starts to do weird wacky things.When he was on Risp he ended up with TD within 3 months of taking it (best three months in a while) now that the Lith/Dep/Sero/Clon coctail is working his thyroid decided it did not like the meds. So as of right now we are staying in the combo with the hope that the thyroid will not show any signs of decreased ability to work properly.
So the blood results of 12/16
Lith 1.02 (fasting)
Dep 140 (fasting)
Thyroid TSH 14 down from 29
So the blood results of 12/16
Lith 1.02 (fasting)
Dep 140 (fasting)
Thyroid TSH 14 down from 29
Wednesday, December 7, 2011
What does "Stable" look like?
I have been saying all week JD isn't stable. But you know what I think he is. I am remembering back to March when I was talking to his new pdoc at the RTC and he said when we get JD stable he will "look" Autistic. And low and behold that is what he has "looked" like this week. Examples that come to mind from over the last week.
1. Singing Christmas Songs at the top of his lungs at the park and never noticing that everyone near him had to get up and move because it was annoying! (kinda like Buddy the Elf in the movie Elf)
2. Or not understanding why my friend who is chasing 2 three year olds around the park could not stop everything and sing with him!
3. Doing his puzzle none stop.
4. Licking his pants at the doctor's office. (at least it was his and not someone elses')
5. Asking for little kid stuff for Christmas.
Part two of this post:
Lab Levels From Hell
as of yesterday 12/6
Lith 1.45 (.6-1.2)
Dep 142 (70-120)
TSH 10.7 (.40-6)
Levels on 11/20 (no med changes)
Lith 1.0
Dep 103
TSH 29.9
What the heck is going on with this poor kids blood levels?
1. Singing Christmas Songs at the top of his lungs at the park and never noticing that everyone near him had to get up and move because it was annoying! (kinda like Buddy the Elf in the movie Elf)
2. Or not understanding why my friend who is chasing 2 three year olds around the park could not stop everything and sing with him!
3. Doing his puzzle none stop.
4. Licking his pants at the doctor's office. (at least it was his and not someone elses')
5. Asking for little kid stuff for Christmas.
Part two of this post:
Lab Levels From Hell
as of yesterday 12/6
Lith 1.45 (.6-1.2)
Dep 142 (70-120)
TSH 10.7 (.40-6)
Levels on 11/20 (no med changes)
Lith 1.0
Dep 103
TSH 29.9
What the heck is going on with this poor kids blood levels?
Wednesday, November 30, 2011
Scary Stairway to Heaven, Hell or Purgatory?
First off he is out of the hospital. (10 days) Did anything improve while there? I don't think so but I hope so. Med change was more of a lateral move. Discontinued Ten*ex went back to Clon*dine.
So as of now the meds are:
Seroq 100, 100, 400
Lith 300, 300
Dep 500, 500
Cloni .1, .1, .1
Lith level was 1.0 and Dep level was 103
So I feel like I'm standing on a dark staircase. I do not know which way the stairway is going is it up is it down is it sideways or am I stuck on one step. I guess only time will tell and I will just keep on keeping on for the whole family.
Wednesday, November 23, 2011
The Vampires have attacked!
Thank goodness JD is very good about getting blood drawn. They are testing the lith levels daily at this point. When he went in it was 1.5 down from (2.2) then, .7 then 1.0. I have no idea why it is going up and down like that but that might explain why his mood is going up and down! I'm no doctor but that would be a fair guess I think. Also the Dep level is off. It usually is around the 120-122 level and it is down to the 103 level. So as of today he is still in the psy hospital. Which means we might not be a complete family for Thanksgiving but after the Thanksgiving from HELL last year i'm not sure any of us would be upset not being together.
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